User Survey

Member Login

Contribute your opinions to our Project

What we will do with your information

  • Track activity on the site
  • Provide you with a passcode giving you access to our advanced learning modules and decision making tools (when available)
  • Customize your website-navigation experience                                           
  • Read the comments you leave for us
  • Invite you to participate in future data collection surveys 

What we will not do with your information

  • Attempt to personally identify you or your family member
  • Transmit, sell or share your information to 3rd party vendors
  • Bill you for access to this website – its free…really!
main purpose
your relationship to someone with DS